Comments on: Omegaven Part II

By: christy

christy — Thu, 26 Jun 2008 15:50:44 +0000

I found out about omegavan through a friend in green Bay who had her daughter on it. I called boston children’s hospital and they flew us out there right away. Our baby Kaylee was about to lose her life and now she is doing great. She has grown so much. She is now 17 months. Thank you Dr.Puder and all the staff at Boston Children’s Hospital.

By: chris,april and family

chris,april and family — Fri, 25 Apr 2008 17:58:28 +0000

Hello Jasmina and David hope all is well. Troy (our 2 yr old son) was put on OMEGAVEN since he was 8 or 9 months and his billis were over 300 and since he has been on it his billis are at 10 we call it a miricle drug; and our daughter Jadyn (1 year old) after her liver and small bowel transplant and the extraction of the small bowel (rejected too bad,had to remove it) she was put on omegavan ’cause her GGT was well over 2500 she more than likely will only need the bowel transplant not a liver as well. But like i said if it was for OMEGAVAN I believe both babies would be in hospital until they got a transplant. We would like to say good luck with everything and hope we don’t see you’s for a while for the kids sake.

By: Chantelle

Chantelle — Tue, 22 May 2007 07:40:18 +0000

Hi there, our computer was sick for awhile. Wow I had never heard of omegaven before. It is wonderful that your raising awareness in regards to this. Our son Vincenzo is doing very well now, but I can’t help but wonder about all the other children out there. I just hope & pray that some progress is made soon in making this easily available for the people that need it. Thank you for the information. I will do my best to pass on this knowledge to anyone who will listen.
God bless & take care,
Chantelle, Sal, Shalynne & Vincenzo

By: mamarraine

mamarraine — Fri, 18 May 2007 14:12:27 +0000

Thanks Abby for your kind message! We’ve been following Ellie’s blog as well, and it’s like we almost know her! She is such a sweetie! Thank-you for your blog… it is encouraging to many parents who face a similar situation!
Take care,
Jacinta (Sébastien’s godmother)

By: Abby Brogan

Abby Brogan — Fri, 18 May 2007 01:47:16 +0000

I have been following your blog for a while now. Your son is adorable and you two are such strong, great parents. It is nice to find a other parents that are willing to talk about their child and what they are dealing with. It is also nice to see other parents writing about Omegaven. We have meet two other short gut families in Canada that have managed to get their kids on Omegaven. It is slowly but surely becoming more and more available around the world. Keep up the good work, and thank you for updating your blog so frequently, it is a great read.
Sincerely,
Abby (Ellie’s mom, The Shortgut News)