Out of curiosity, I asked Jasmina what Sébastien’s medications were, aware that they change according to his health. Jasmina is always happy to oblige and provided me with his schedule, already typed out and organized…
- 3:00 a.m. – Domperidone (1.6 ml)
- 6:00 a.m. – Omeprazole (1 ½ tablets)
- 9:00 a.m. – FK (0.5 mg-1 tablet), Penecillin (2.1 ml), Calcium (½ tablet) without feeds running, taken orally, D-Vi-Sol Cholecalciferol (1 ml) (Vitamin D)
- 10:00 a.m. – Domperidone (1.6 ml)
- 3:00 p.m. – Omeprazole (1 ½ tablets)
- 4:00 p.m. – Calcium (½ tablet) taken orally
- 9:00 p.m. – FK 0.5 mg (1 tablet), Tacrolimus, Replavite (½ tablet), Penecillin (2.1 ml), Calcium (½ tablet) taken orally
- 11:00 p.m. – Domperidone (1.6 ml), Omeprazole (1 ½ tablets)
Sébastien’s feeds are regualted at about 645 ml of formula per day, fed through his central line, starting in the late afternoon and ending in the morning.
Dialysis days (Monday, Wednesday and Friday) bring a slight change to the schedule, as Sébastien wakes up for dialysis at 7:30 a.m. Saturday morning is bloodwork, and on dialysis days, Sébastien is weighed… his least favorite morning ritual! During dialysis, the nurse administers two other medications: Calcitriol and Darbepoetin.
Eight different medications a day, ten on dialysis days, four of which are vitamins (Calcitriol, Replavite, Calcium and Cholecalciferol), and only one major anti-rejection drug (Tacrolimus). The four remaining treat different things; Darbepoetin for low red blood cell counts – due to kidney failure, Domperidone to increase movement through the digestive system and inhibit nausea and vomiting, Omeprazole to block acid production in the stomac – as Sébastien has acid reflux, and finally Penecillin, which generally prevents infections especially in the blood.
Considering all that, Jasmina and David have a fantastic memory! And on a lighter side, things could be worse.
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