Hello to all of you!
Just sending you a message to invite you to please keep Sebastien in your prayers this coming Thursday as he undergoes his unique capsule test and we are all praying that this test will go smoothly and that Sebastien will stool this capsule out and we do not want this capsule to get stuck in him as it would mean to cut him open to retrieve it…… ahhhhhhhhhhh not good…. well soooooo please pray for this capsule to end up in his Ostomy pouch and that the camera in the capsule will take all the pictures necessary to give us answers to fix his bleeding issue…… (Jacinta did such a great job on SEbastien’s website to provide a link to the Capsule Procedure and you can see it online and read up on it and you can have a better idea how big this capsule is, we actually got to see it last night and Sebastien was allowed to explore it as we are preparing him by showing him what we will be doing with him on Thursday……. sooooooo we are all praying and hoping you will join us that everything will go well and we thank you for always praying and supporting our little monkey SEbastien xoxoxoxoxooxooxoooxxoxox
On a different note I want to share with you a little story that just happened yesterday and it really touched our hearts….. David brought early morning Sebastien to his Dialysis treatment and I got the wonderful treat by David to sleep in and have breakfast and do my Physio Exercises ( yes I need now Physio too =:)
and just finished packing all the things for Sébastien’s hospital stay sooooo off I went from our apartment walking with a heavy suitcase, cooler and most needed Barney, Dora, Boots and Elmo to the Sick Kids hospital…. Austrian as I am I just enjoy walking and don’t mind pulling all the stuff to the hospital, well I got of our elevators of the apartment and my first challenge was to get through the 3 doors, no problem there was my hero /Angel# 1 of the day, a old Chinese Lady, opening each door, with a smile I thanked her for her kindness and off she went and continued her way, I thought in my head oh how kind and nice….. ( it does not happen very often that someone will open the door when I come with Sébastien and his avalanche Stroller that someone opens the door at our apartment block) I continued and a few minutes later I see the old Chinese Lady come back, she came up to me and said: I will help you at least until the next intersection…… Wow… I couldn’t believe what I just heard…. thanking her for her really kind offer we continued our journey…….I had to stop for a dear friend at the health food store to pick up some more Healthy stuff and I got to the next intersection and was waiting to cross the street and suddenly I hear another person asking me a question…..: Do you need any help…… Well, you should have seen my face…… another kind Hero/Angel #2 well not sure what to say and just sooo amazed by the kindness I thanked them and we continued our journey to the hospital……. What a beautiful beginning of the day…… soooo finally at the hospital our day was just quiet, filled with anxiety not knowing what we will do and enjoying playtime with our dear Sébastien…….soooo the day goes on and we get one hour to go out and have supper before we had to check in with Sebastien’s night nurse, it was a beautiful evening made by God and the sun was still shinning and Sebastien requested Noo, Noos (Noodels) sooo David and me decided to treat Sebastien to a nice Italian Pasta close to the hospital and usually we take out but this time we thought we just gonna enjoy the nice sun and evening and sit outside at this little non expensive Italian restaurant on Baldwin Street. Well, Sébastien wont be allowed to eat after this supper until Friday….. ahhhhhhhhhhhhhh… we just gonna watch Barney, Barney, Elmo, Dora, ……or play, play, play….. Soooo well, we sat down ordered some food and Sebastien was all exited about his Noo, Noos…….. Sebastien just has a special gift to warm peoples hearts and the couple just sitting beside our table started talking to us charmed by Sébastien’s beautiful smile and Aura……. Talking shortly with them they learned about Sébastien’s profound Journey and encouraged us with their wonderful words of support. We thanked them and continued with our supper as suddenly they offered us each a glass of wine and just amazed by this wonderful kindness of two strangers I nearly started to cry…… the Lady said: you know we have a granddaughter of 7 1/2 months and she is all healthy, you have to be sooooo gratefull for your health……….we were sooo touched and Sebastien got to even touch their beautiful 2 puppies and he was sooo amazed by them…. it just was like being in heaven for Sebastien as he loooooooooooves puppies…..
Well here are my Heroes/Angels #3and 4 of the day and I could not believe how blessed we were today with just random strangers being sooo kind and thoughtful….. It opened my eyes that in all this Anxiety that we are experiencing at the moment preparing for this big test God could have not been closer to me by sending all this Angels along our paths and I learned A RANDOM ACT OF KINDNESS does not take a lot but it will make someone else’s day and I had a day filled with them…….
Sooooo thank you to all of you for making our day and for being touched by Gods Love and Kindness with A RANDOM ACT OF KINDNESS BY A STRANGER.
With Love and Thanks and United in Prayers
little monkey SEbastien xoxooxxxox
David and Jasmina Forest xoxooxooxooxoxxoxoxoxooxxooxoxox




Hope all went well and it was a success! I Will pray for you all at SPiri this weekend! bon chance. amour et embrases. cathy
We are prayer for you. Hope everything goes well and they can finally find the cause of Sebastien’s bleeding!
I am the home-nurse for my little “Arman”, 13 months old, 10 lbs, short bowel syndrome, (he was a premie 1.6 lb, NEC complications…) just got home 3 weeks ago after 1 year in the hospital! We are in California, USA. Arman is back in the hospital every other week due to sepsis infections– of his Broviac line, enteral contaminations etc. I just found your blogs– am so encouraged to hear your stories so I can become a better nurse. Arman was just evaluated by a transplant team for a colon and liver transplant–but he needs to gain 6 more lbs before he is a safe candidate. I want to see what I can learn from you about how to hasten his health, gain weight, avoid infections, organise his room, make a specialized care plan. Arman is on IV Omegavan, an experimental lipid. Have you heard of it? The capsule test sounds fascinating–how did it turn out?
suzi and monkey-arman