…. how time flies and Sebastien is now off to school, the picture shows him getting ready in the morning for school and he always carries his little pump ( black backpack) with him which is his feeding pump. He loves school and he really enjoys the company of the other childern, learning new things every day, going to gym class, story time, songs etc…… He has a wonderful nurse at his side at school as well as a Teachers Aid that supports Sebastien in the class. Monday, Wednesday and Friday I pick him up after lunch and bring him to Dialysis where he again has school for 1 hour with a one on one teacher – he always looks forward to that time.
The school has been very supportive helping us by educating the students about Sebastien’s fragile health and I have been going from class to class and held presentations about proper handwashing, covering your cough and sneeze in the bend of your elbow as well as infection prevention and especially teaching the kids about not to come to school with symptoms of cough, sneezing, fever etc…. also did some H1N1 education and what the kids as well as parents can contribute to protect themselves. The kids are awesome and take all this information very serious to also protect Sebastien. Also a letter was send home with the kids for the parents about Sebastien’s fragile health and David and Myself did a presentation to all the parents at the Curriculum night about Sebastien and prevention of Infection, H1n1 and washing of Hands etc…. We made the whole crowed cry, well they started crying already with the first picture of our presentation of our slide show, it showed Sebastien in Intensive Care Unit, (you could only see his hand) with his hand tied down and multiple lines attached and holding his rosary in his hands – that picture made them cry already and as the second picture came up showing Sebastien held by his dear and loving Grandma in her arms showing Sebastien attached to millions of different lines and tubes, but not even millions of tubes stopped Grandma to pick him up ( it actually took 10 people to lift SEbastien safely into Grandmas arms and ensuring that no tube would be pulled, it has been more then a few weeks we weren’t able to hold Sebastien and you do anything to give Sebastien this Love and feel your son close) and carress him with her motherly LOVE…… well the Parents at school where so touched and even more tears run down there cheeks and many came up to us after our presentation and thanked us for sharing our story of LOVE 
Sebastien looks so good here! Thanks for the update. It is good to hear how well he is doing!
You both must be so proud! As a new parent, I can not even begin to understand how hard this has been for you both. You would do anything for your little one – No one can truly understand that until they have had their own child.
I am so happy to hear the good reports!
Stacy
glad to hear all is going well……we’ve had our ups and downs and a few hospital returns since leaving but Maia is loving JK and is set to take over the class. Connie is working in the High School this year. We’re doing the ‘medically fragile’ talks too……so far so good. We have night nursing 3 nights a week so we get a bit of sleep and Maia has assistance as she needs it at school. We are at clinic this Tuesday ( Oct 6th ) with Dr Wales….
Best of Luck
The Davies