….resutls from Scope

We finally received the results from the scope and they are good and they couldn’t find anything concerning. So that is really good but on the other hand Sebastien still has some blood at times in his stool and we are praying really hard that this is going away and Sebastien stays healthy and strong. We challenged the medical Team to still investigate more as there is a part of the bowel that they can’t reach with the scope and we have to be so proactive and make sure we are on top of things as he is still showing blood at times in his stool and maybe its just a silly ulcer and that could explain then blood in his stool. But to really make sure Sebastien will need another CT scan ( Pet CT Scan – they use radioactive dye in this test ) to look at the entire bowel and this will give everyone a piece of mind and more info to exclude other things. So here we go again in a few weeks from now for a CT scan, Bone Marrow Aspiration and a MRI ( this has been just approved, we waited a year for the government to approve it,  as Sebastien needs to look at the Iron in his body stored from multiple blood transfusion) but Sebastien is just playing away not even bothered by any investigations, enjoying his school so much and making new friends at school and just being able for the first time to be a child at school just like any other child. It is so nice to see him so happy and fulfilled and overflowing with this glow of Happiness every time I pick him up from school. This is what it is all about……Sebastien is a living proof of being full of LIFE