Stoma reversal – Sebastien’s journey

It has been a very intense few days for us. Sebastien did really well after his surgery and when we saw him in recovery he was happy,his major pain controlled by an upper back epidoral and some more pain medication. Friday night he was then transferred to his unit and that Friday night things turned to the worst. All night long Sebastien was screaming in pain,snacking crying and us helpless as he was put on the highes dose possible for his pain epidural. After 12 hours of agonizing pain and us advocating for Sebastien to help him and praying we all with the medical team got an answer to our surprise. As his epidural is suppose to help as a narcotic with all his pain no one could explain why Sebastien would still experience this excruciating pain leaving extremely exhausted. Well, turns out that his epidural somehow wasn’t connected anymore and Sebastien for about 12 hours didn’t get any pain medication. Imagine post a major surgery with a hughe incision on your abdominal with 30 stitches,2 medium size incision,each of them on the site of Sebastiens abdomin,a tube in your nose,multiple ivs and a catheter for urine. Ouch ,ouch, ouch
After this was finally delt with it takes a good 12 hours to bring the drug level up so it has a good effect on hid pain management. Sebastien after all of this was so exhausted and finally slept and so did David and Me.
Saturday night his urine catheder blocked leaving him in pain.
Sunday morning his first poop from his rectum arrived, yeahhhh we were so happy and so was the team as this is a sign that the surgery was a success.
Pain management was still hard as again Sunday night his catheder blocked and we had to clear that to relieve that pain.
Also as he has to swallow his pills and he had a nasal tube in his nose he chocked up on his meds and he tried to clear it by coughing which caused extreme pain to his incisions. In-between all of this David and Me are alternating moving his legs,his arms, turning him onto different sides so fluid doesn’t accumulate in his longs, blow bubbles with him so he expands his lungs despite the long incision,massage his body with lotion also help move fluid, breathing exercises with a special device, etc….
After all the long hours we were just so tired and there was no time to update you all as all our strength went towards constant care for Sebastien. Thank you all for praying and thinking of him.
We are do happy that Grandma came to help with Genevieve, as it would have been impossible to keep up with all that has gone on over the last intense days.
Today Sebastien had a somewhat good day,he is being more himself,is allowed to eat and things are moving into the right direction.

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